The Fire, Christmas Lights, and The Moon

The Trapped Butterfly loves Christmas as does her husband. But life has done what life does to make Christmas bittersweet. And she has great Christmastime memories from childhood and not so great memories. They have lost loved ones, family, and friends which makes Christmas bittersweet.

However, that doesn’t stop them from decorating and enjoying the hell out of Christmas. She’s been desperately wanting another outside day with a fire that would go on until it got dark. It’s been about five years since they have had a fire outside when it was nighttime.

Today was a beautiful warm day for December. 56 degrees and not too windy. The Trapped Butterfly and her husband had agreed to an outside day with a fire. They were both in a good mood today so they played their silly games that only they understand. She had gotten some Mickey Mouse light up ears for fun and was looking forward to wearing them later when she was higher and in an even better mood. She told her husband that he was going to “get it.” Poor guy didn’t know what she was thinking.

It felt pretty warm out when he pushed her outside in her wheelchair. It was partly cloudy and she was disappointed that she probably wasn’t going to be able to see the stars and planets as she had been doing the previous times that they were out there until after dark. In fact, one night she had sat outside alone and was amazed by the colors of the sunset, the Christmas lights coming on, and then the planets and stars that eventually filled the night sky.

Today the fire was beautiful from the start. They used a cardboard box with sticks to get the fire going. There must have been plastic or something on the box that was making little fire sparks slide down to the ground. It was magical.

She meditated and watched the fire throughout the afternoon. Birds flew overhead and one was so loud when it squawked that it startled both her and her husband.

She drank cannabis infused juice and then she had a couple of shots of tequila! The higher she got, the more beautiful everything was getting. As the sun was setting, sparks of the fire went up to the sky. It got brighter and brighter. She kept saying, “It doesn’t get any better than this.”

Getting goofy, she had her husband get her light up Mickey Mouse Christmas ears. He had turned on their outside Christmas lights and they were shining bright. She looked at a medal part of her wheelchair and it was so psychedelic from the reflection of the Christmas lights. She loved it.

She wore her ears for a while and got pictures. Then it was time to enact her plan on her husband to get him back for the games they played earlier. He, surprisingly, put the lighted ears on and took pictures! 😂😂. She was laughing so hard at him not figuring it out right away. Finally he got it and they laughed and played around. She kept wearing her ears.

It was getting darker and darker. Other Christmas lights were coming on in the neighborhood. So beautiful and cosmic. The fire got brighter and brighter. She hadn’t seen anything more beautiful in so long!

As they sat, a fox came up from the neighbor’s yard and began to cross the road. The fox made eye contact with them and got scared even though she was trying not to do anything to scare it away. It took off into the field across the road. They were both excited that they got to see a fox so close.

Similarly, that spring a baby deer ran across their yard. She always prays for animals because she doesn’t want them to get hit by cars and people can be so cruel. She loves animals.

As the night fell, the fire was allowed to dissipate and she watched what her husband calls, “Coal City.” A bunch of beautiful orange coals were flickering. It was beautiful.

She kept looking at all the Christmas lights throughout the neighborhood. The lights were so beautiful and she kept feeling herself relax. She also found herself remembering all the normal times that she had been outside at night—from childhood to adulthood. Being outside at night was a normal, frequent occurrence year round. She missed it all and noted at how much she, and all people, take for granted. Covid has at least made her more aware of everything that isn’t guaranteed in life. It’s easily taken away from you in an instant. Covid is on the rise again and, thankfully, The Trapped Butterfly and her husband have managed not to get it. Both are still sacrificing to avoid being infected by this nasty virus that is definitely damaging people’s bodies in ways that they don’t even understand.

While her husband was starting to put stuff away and put out the fire, she was sitting outside by herself and she saw a bright light through the fur tree. She looked and thought it was a street light but there’s no light there. She realized that it was the new moon! Tears streamed down her face. Her husband came out and she said, “Is that really the moon?” Her husband had been seeing it behind the house in the past month but there it was…A bright sliver of the moon. She was crying and saying “Thank you” to the Spirit world and the Universe and the moon for allowing her to see it. Soon the clouds covered the moon back up. She was just blown away by it and everything she was able to experience.

May there peace on Earth and goodwill towards men.

Venus, Stars, and Peace

The Trapped Butterfly had a great Halloween with her witch costume. Her hat lights up in purple. She actually got to update her Halloween knee with a purple witch, bat, purple Grateful Dead dancing skeleton, a UFO, and a vampire tattoo. She didn’t want to leave the coziness of the artist’s studio in the shop so she had him add more pink and purple sky background. He went crazy and it made everything pop even more.

She was on the usual high after a tattoo session. She couldn’t believe that she was able to get three projects done this year before having to take a break during the respiratory season since everyone is being so stupid with not taking Covid seriously anymore. Thankfully, she has two appointments with him this spring already. Even though, like the majority of people, he doesn’t mask up anymore, he definitely keeps up with the shots and wears a N95 mask with them to keep them safe. She is very grateful to have an artist who will make getting ink as safe as possible.

Unfortunately, the high didn’t last very long due to family members getting Covid again and the ongoing war against Hamas. People are just becoming so stupid. They don’t understand that they are supporting a terrorist organization that Israel must defeat. The Trapped Butterfly has tried to explain about Hamas to people who are seeing the destruction in Gaza and the innocent civilians being killed that don’t want to understand about Hamas using civilians as human shields. Of course, she gets blocked by friends for this. She also gets nowhere with trying to have a conversation with people. She is terrified at the world she lives in.

She woke up crabby this morning and decided she needed an outside day. The leaves crunched under them. She had fun looking at the different colors on the ground and what is left on the trees. Cute little squirrels ran around high in the trees. She worried about them falling being up so high but they knew what they were doing.

As the sun set, the trees with red and golden leaves were absolutely glowing in the sun. Everything just kept getting more and more beautiful. The silhouette of the dark trees against the orange and yellow sky was breathtaking. She eagerly started looking for stars.

Finally a planet and then another planet and then Venus! She was delighted to see what they believed were Mars, Jupiter, and Venus. Venus seems to be becoming her new friend and constant as she has seen her in every season. Even just looking out the windows at night in the summer when they no longer seem to be out at night due to their limited activities in order to protect themselves from getting Covid.

Tears filled The Trapped Butterfly’s eyes as she watched it get darker and darker with more stars filling the night sky. She prays to the Spirit World and aliens to please come help this horrible world. She wishes for peace and healing. She soaks up every second of the quiet, starlight evening before having to go back in the house to eat and do the nightly routine.

She is looking forward to having a fire soon and watching the night come. Little do humans know just how small and insignificant they are in the grand scheme of things.

Supernatural Beings and Peace

She was sobbing. Hot tears streamed down her face and she had an unexpected, intense urge to go outside. Usually she wouldn’t even ask to go outside on the whim like that, but she just needed to get out and pray/send positive vibes up to the universe without the confines of the house.

The second her husband pushed her outside, her whole body relaxed despite the intense, unexplainable feelings that were surging through her. She cried and took some deep breaths as she looked at the beautiful orange and yellow sky with the sunset. She whispered softly at the almost night sky hoping that They would hear her. Both the aliens and the Spirits.

The movie that they had just watched was called, “Arrival,” which included alien beings coming to Earth to help mankind achieve the alien’s goal of world peace. Oh how she wishes that the world leaders would get high on marijuana and watch the movie.

There was also the concept of some being able to see their own future and how choosing to still do something that would be heartbreaking but so meaningful got to her. She often wonders nowadays if she would have made the same choices that she has made up to now despite the joys and the devastating pain that she has endured. There was one thing that she used to regret about her ex-chosen family…She had said she wished she had never met them. But now, despite some lingering pain that remains, she realizes that it is a part of her journey and she wouldn’t be the person she is now.

So many thoughts going through her mind right now but it’s all cosmic. She had been wanting to see the moon for a while now and while they were outside, she happened to turn her head to the side and looked up and there was the moon.

May You come and somehow bring peace and love and healing to this world. Please…….

Dark Clouds, Sunshine, Venus, and More Dark Clouds

It’s been a good month for The Trapped Butterfly. The 20th wedding anniversary celebration was awesome! The rain stopped for it and despite the park having the wrong date for the shelter, the group that was using the shelter left without a problem.

Seeing people that they haven’t seen in years was wonderful. Not worrying too bad about Covid was wonderful! Everyone’s eyes were so sparkly. The trees were full of fresh buds springing to life. The temperature was perfect. The only annoying thing was the wind blowing at times.

Looking into his beautiful sparkly brown eyes as I they renewed their “vowels” as The Trapped Butterfly had been calling it was breathtaking. She actually can’t believe that she didn’t cry that much. The ceremony was led by her early childhood professor who is now a lifelong friend and the ceremony was full of laughter and love. Typical for The Trapped Butterfly and her husband as they have a both goofy yet sweet relationship. It came through in the ceremony!

Being around people again renewed her spirit and sense of hope that she will eventually get her life back. She looks forward to celebrating her children’s book that is finally almost finished and ready to be published!

So much trauma with this book. Her so-called friends wanted to help but they fucked them over. This true illustrator has gotten this done in about 8 months. It’s just about done!! Her “friends” didn’t keep working on it consistently and they quit because they were assholes.

While she is so excited about her book finally getting done, she is sad because she can’t do what she’s been hoping to do and go to libraries and schools to read the book. She hopes to have an outside book party with a plexiglass cube around her to avoid Covid exposure while, at least, getting to celebrate the book and see children. It’s heartbreaking that she hasn’t been around children for 3 years now. She misses it so much. Her husband thinks that with a cube around her and having it outside will be safe.

Despite all the beautiful sunshine from having major things finally going right, she feels the dark clouds still coming in as she deals with the fact that, yes, she hung out with people and celebrated her 20th wedding anniversary as well as her book getting done, she still isn’t completely freed yet. They are going to get their second bivalent shot next week, but unlike most people, they still can’t just be normal. They are terrified of Covid and she doesn’t have the ability to take the treatment for it. They are still trapped. But she is trying to hold onto hope that this won’t last too much longer. She has to accept the darkness of the clouds.

Plus, tomorrow is her narcissistic mother’s birthday and she hates it. It’s weird because she didn’t feel sad about her family not even knowing about the vow renewal. She didn’t miss them. She is grateful for the video her friend took of it because they haven’t watched their wedding video in years with so many nasty people that have hurt her deeply, but yet, she wishes she had a mom like she thought she did before everything finally blew up 4 years ago.

Then May 2nd is the 7th anniversary of her dear grandpa leaving the earth. She misses him so much. She can still hear herself screaming, “Grandpa, No! No! Grandpa!” Tears wick at her eyes writing that. He was far from perfect. They fought sometimes but they never let it go beyond that time and always ended on a loving note. He was the only family member that was able to have a healthy relationship with her.

She looks out the top of the window and she has been seeing Venus in the night sky. It gives her comfort as she continues to hope for more of the sunshine (without the heat) moments and faces the dark clouds that are always trying to overcome her.

Planets

The Trapped Butterfly has had her ups and downs in the past few weeks. Sitting outside until dusk in late February when it was unseasonably warm, she delighted in seeing Venus and Jupiter in the dusk sky. So beautiful and so far away. Whatever life forms that may be on those planets have no idea what is happening on Earth and we have no real idea what is happening there. Storms, yes, but who knows if there’s different life forms there that either are suffering or are peaceful…Perhaps they are both suffering and peaceful like here.

Then she was able to go back to the original tattoo shop for a new piercing and some much needed earring changes. The piercer actually remember them from when she used to be there sometimes twice a month for tattoos. The Trapped Butterfly had been afraid to go back there due to probably receiving the wrong information about stuff that happened years ago. But it seemed to be forgotten or not even thought about. It was weird to be back. The place is painted gray and is an open floor plan. The piercing was wonderful and just getting to be normal in a safe manner was wonderful.

She also has a tattoo appointment April 3rd with a tattoo artist that is willing to wear a mask and do it on a day off. She is going to try to rework the lizard leg that has been driving her crazy. It’s going to be emotional but she is so ready to even have it look completely different than what it was supposed to be.

Sleeping has been rough lately because she can’t sleep on her piercing and she has sores on her other ear. She keeps ordering pillows for this situation with holes in them, but they are too high for stomach sleeping. It just seems like she doesn’t belong in society anymore. No stomach pillows, people acting like Covid isn’t real threat anymore, having to make sure that they are safe. It’s exhausting and she feels unseen by most people who are supposed to understand. Not to mention that it’s Cerebral Palsy Awareness Month which gets very little attention despite it being the number one lifelong disability.

But this morning she was visited by the moon and the planets. In her dream, they were so close and big in the sky that it was almost as if she could reach up and touch them. The moon was bright white. Then Venus was so bright and colorful. So was Jupiter, Saturn, and Neptune. It was a very trippy dream. One in which she could have stayed in forever. No ableism, no Covid, no pain, no struggles. Just pure wonderment and awe as the planets kept coming up in the sky.

Maybe it’s the spirit world trying to keep her up as she continues to deal with the reality of what she has lost. Moments of peace and beauty are what make her keep going in this life that she honestly doesn’t want to live anymore but she has no choice but to love her husband and kitties while they wait for an easier time to come.

Precious moments of joy and peace

Her stomach is full of sushi and she’s nice and high as usual. Pot is wonderful! Tonight they got sushi via DoorDash. Her anxiety was high because of last week when they ordered it, it never came and they cancelled the order.

When it arrived, tears of joy came to the surface of her eyes. The smell was so scrumptious. Fresh, sweet, succulent. And that’s exactly how it tasted. She tried to remember to take time to really savor the flavors. The avocado was so fresh that it melted in their mouths.

She hated for it to end even though she was so full. She enjoyed the beer she had with it. Her husband always feeds her so he made sure she got every single bit of meat! They are aware that animals give their lives for food and they try not to waste anything.

Days like today are precious because they actually go “right.” Despite all the bull shit going on in the world as well as ongoing personal issues stemming from child abuse, being disabled, having diagnosed mental health issues, and being trapped by Covid while the rest of the population is just deciding to ignore it, today they basically shut out the outside world. They stayed away from the news, except for a cute story of a little 6-year-old boy who ordered about $1,000 worth of food off GrubHub, she really limited her social media, enjoyed getting another illustration done and the next one going, and they enjoyed things they liked. To top it all off, they decided to use the gift money from her sister-in-law gave them to cheer them up after they fell to get sushi.

Shutting the world out is becoming more of a thing for her because it is too painful to be on the outside looking out at people doing life that she can’t because of Covid. It’s depressing and maddening because she craves social interaction with people who are cool about her disability. She is a very free spirit who loves to have fun.

So today was a welcome change for her. She is so grateful that they experienced peace today. Tomorrow hopefully she will get to go for a ride which will help her to get to see things even though she will have to see people not caring about others. It’s still awesome to get out of the house and ride around.