Lost? Yes. Found? Not sure.

The Trapped Butterfly is experiencing extreme depression and anxiety. She didn’t want the Christmas season to end. She struggled to settle completely in this season as once Halloween was over, she started finding out about some liberals, including ex-friends, were anti-Israel. She has too many Jewish friends who have been loyal to her and are good people to just follow the liberal agenda of Israel committing “genocide” in Gaza. She understands that Hamas uses its own people as human shields. She stood her ground and still does when it comes to the Jewish community and Israel. Yet, she has nothing but compassion for the innocent people who are suffering because of the war.

However, it was still painful to find out again that the people she thought were “her people” really weren’t. This caused her anger and anxiety which spilled into her life. Thankfully, she has pretty much gone through the process and has limited her self with social media.

The other thing that made it hard for The Trapped Butterfly to completely settle in to the most cosmic time of year was worry and frustration over family as well as her book. A family member is really struggling right now and has been for months.

She dreaded the New Year because she knows that even though the death rate for Covid this fall and winter has been slightly lower than last year and definitely dramatically lower than the previous 3 years, it’s still too high. They have been back to where they basically were last year. People are still dying daily and everyone is ignoring it. Hospitalizations are still higher for Covid than they are for the flu and RSV season. Basically, even though we’re, maybe, making some progress in the pandemic, it’s not enough to be safe living normally for her husband and her.

She has been trying to find her way. Her friends pushed her to get a petition going to try to get masks back in medical facilities year-round in her state. She knows she needs to make a difference in the world so she felt like the Spirit World wanted her to do it. Even with the knowledge that most petitions don’t succeed, she finds herself doing what she did with her first book, with her gofundme campaign, and other efforts to create change…Feeling like she is trying to get positive attention, not getting it easily, and taking it personally. Feeling like she has to do all this stuff that she doesn’t feel like she’s good at.

Wanting to remain open to the Spirit World and trying to find her place in a world where she is even more not welcome in, she set up a meeting with the marketing agent that she still wishes she would have taken her time to find someone who would really meet her needs. She gave in to the need to help people as well as the need to be victorious in getting her children’s book published after all the years of trauma that she has endured to finally get it illustrated and published and hired the guy without knowing that he is a right wing person. Usually this wouldn’t be an issue but with Covid, is for her. It was much easier when the book was in the process of being illustrated. If it wasn’t finished, she couldn’t publish it. She, naively, thought that Covid would be safe for them by the time it was ready. That is not what happened and this year she has lost hope that “this will be the year that they will finally figure something out and she will be free again.”

So when they video chatted with the marketing guy, she was trying to be open. He didn’t want to help with the petition and he gave her “tough love.” Ironically, she hates that word and she believes that she actually shut herself down. She didn’t want to lash out. She wanted to be open and hear him out about going ahead with publishing the book for Cerebral Palsy Awareness Month in March. And he is right about the fact that kids need this book. Something else that is bugging her big time. There’s not a children’s book like hers out there and it’s got to get out there. He said that it’s not what we want but we can make it work with online events and interviews. The Trapped Butterfly is trying to get used to the idea of not being able to do the book traditionally.

She still had that gripping pain in her chest as her husband was in agreement with the agent. She agreed while getting emotional about how badly she wants to be in the public doing events. It’s obvious that society has a real empathy problem. They don’t care if the vulnerable live or die or her petition would have thousands of signatures…Actually, there wouldn’t be a need to have a petition for masks in medical facilities because they would still be doing it anyway.

After the meeting, she felt proud of herself for being calm and open about this. But the pain in her chest remained. She reached out to a few trusted people to process it. Then the person who delivered her prescription, got the wrong prescription as the pharmacy got it wrong. So they rushed out to get the right prescription before the pharmacy closed. Nighttime drive.

Despite the anxiety and stress, she tried to enjoy the ride. The sunset was fiery pink, orange, red, and purple. Beautiful. The lights were bright and beautiful. The darkness of the trees in the forest were beautiful. Some houses had white lights still on. Despite the awfulness of the situation and having empathy for her husband who had to snuff out the cigar he was smoking as well as the physical pain he felt to do everything he had to do to get them over there in time, she knew this would probably be the last time she would be in the vehicle at night.

Her mind keeps racing. Her emotions are everywhere. So she is trying to practice her meditation as well as self care. During her “talk” with herself during the time her husband was cleaning up after dinner and feeding the cats, she found her mind going crazy and started to feel panic. She started softly talking to herself as if she was her best friend.

During the talk, she discovered a pattern. Instead of dealing with the conflict in her about the book, she shut down. She didn’t want to argue about it. She just agreed and figured that the fear would go away. Maybe it will. However, despite being a fighter and a firebrand, there are still times when she would just go along with whatever it was. She did it with her family, her friends, and her husband. They probably didn’t realize it because she didn’t even realize it until now. Plus, the abusers got what they wanted from her. It’s healthy to do it occasionally with your spouse but it’s a definite pattern in her.

The Trapped Butterfly knows how to stand her ground, but yet, she is still a people pleaser. Plus, abuse can make one afraid to stand up for themselves. She believes that she did this during the meeting.

Then she found herself questioning her instincts. She felt that she didn’t have good instincts, but she was able to look back at the past 4 years and see how she has made very difficult decisions in order to keep them safe from Covid. She is doing the best she can with all the hell she’s been through the past few years and more.

She often still worries about being a narcissist and being too much like her parents. But she found herself wanting to write people back instead of writing this story. If she was a narcissist, she would not give a fuck about anything but what she wants.

She keeps thinking that she wants to talk to her therapist about this. She cried softly and tried to tell herself that she is doing remarkably well with her situation. She has been going through hell, but still finds ways to incorporate joy in her life.

She really needs to explore with her therapist about her fear versus her instincts because she’s just not sure what is what. She needs to put herself first. Yet, she needs purpose.

She needs to explore why she shuts down sometimes and agrees to things whether it’s right or wrong. Sometimes she just isn’t aware she’s doing it. It feels right in the moment. But with the big stuff, she needs to figure this out before she gets herself in more trouble than she can handle…again…

And she is always looking outside for answers and guidance. This is normal and healthy behavior, but she does need to be able to look inside herself to find answers. She has to trust herself. But how? It’s so hard when things are really hard and she has to make the best decision when they all feel wrong.

For now, she is proud of herself for becoming aware of the fact that she was triggered by the meeting, feels so much pressure to do the book from herself, and for talking to herself as a best friend would. Not offering advice except to take the time to write this story which people may or may not relate to or enjoy but it helps her feel better. She will also remember that she looked up at the sky when they got home from picking up her correct prescription and saw the moon through the clouds. The moon, Spirits, and herself are always with her.

Trapped Butterfly, you got this. You are not alone. We will figure this out. You are doing amazingly well in this unprecedented time we’re living through. You are not alone!

Losing my religion

She has been struggling with her faith for years now. She still believes in Jesus but that is about it when it comes to Christianity and Church doctrine. She prays regularly but it’s more about sending positive vibes out to the world as well as asking the Spiritual World to help in whatever way They can.

She was a devout Christian since she was 15. It gave her a community and a sense of belonging to something bigger. To be honest, she had always believed in Jesus and Heaven. Maybe her near death experience when she didn’t breathe for 40 minutes at birth is the reason why she found believing in Heaven and Jesus so easy for her. Or maybe she was just so desperate for unconditional love that she was easily sucked into the world of Christianity.

Over the years she continued to be faithful to the nondenominational church. Her husband became “saved” the first year of their relationship.

Unfortunately, they were blinded by what they truly believed was “Biblical.” The only thing that they knew was wrong with some Christians was the belief that they had to spank/hit their children from an early age in order to “discipline” them. But her abuse as well as watching young children grow up, she knew it wasn’t right for God to want young children to be hurt by their parents. She studied early childhood education in college and grad school. There is no doubt that spanking/hitting children is really not what the Christian God wants.

She spent years researching the Bible and the history behind the few verses that Christians use to defend their beliefs in spanking. She naively believed that if she could combine both the research of the Bible with the research of child development, she could change minds. Thus, writing a 500 page book on gentle parenting.

She did reach some who were open to gentle parenting but she got so much hate from Christians. Being called a heretic and satan. It was at this point that she started realizing that this whole Christianity thing might not be what she thought it was.

Then the series of traumatic events happened in the span of 8 years also chipped away at her Christian beliefs. She also became aware of the hatred of the Christian community depending upon which sect they were in.

She opened her eyes to the racism, bigotry, sexism, antiLBGTQ community of most of the mainstream Christian community. Finally, the pandemic started and she saw how important it was for the majority of Christians to follow their “leader” (the former president) and not put the vulnerable first when it comes to masks and vaccines. She just said no to Christianity. It makes her sick. If people really think about it, half of the dogma is just hatred.

Through psychedelic experiences and the guidance of the Spiritual World, she has come to understand that almost everything religion teaches is not the truth. It is man. She can’t even engage with “Christianese.” She has her own personal beliefs and she is ok with others believing differently than her as long as they are not hurting others and being hateful towards others who are different.

Tonight she is feeling uncomfortable because she found out that one of her favorite tattoo celebrities is now a Christian and she just got baptized. Ironically, the celebrity got a lot of hate from fellow Christians who don’t like that she still wears gothic clothing and is a very gothic person. She is a very good person from what The Trapped Butterfly has seen throughout the years of following her. But it was totally unexpected to see her being baptized and she is attending a small Baptist church.

The Trapped Butterfly wished the celebrity well and told her her story in a comment. She hopes that the celebrity will remain true to herself and not get dragged into the dogma of the church.

It’s a very weird feeling to be unsettled about something that she used to celebrate with tears of joy and shouts of praise to “The Lord.” Now she’s worried about how it will change people for the worse due to the MAGA, etc. cults that are absolutely destroying America and people who are different from them. She has watched too many people come to this cult.

She is a spiritual person who is seeing the cruelty of people who are religious. Just look at Hamas. Just look at how the LBGTQ+ community is being attacked by Christians. Finally, look at how people are not being mindful of the disabled, immunocompromised, and the elderly with Covid.

She has been into witches and learning the true meaning of witchcraft which is not the satan worship that Christians have made it into. She hopes that the Spiritual World will continue to use her in whatever way They can. She is trying to be loving while rejecting the people who continue to oppress people.

She got the following tattoo earlier this month with a tattoo artist that understands about the risks of Covid to her and her husband. It fits with the wars going on right now as well as all the anger and hate going on in the world. Plus, still being trapped by Covid because people refuse to do the simplest things to protect each other makes the tattoo even more poignant.

May love and peace reign no matter what people believe. Just stop and let love run wild.

Bombs, gunfire, and explosions

She is in a weird wooden old house. At every turn a bomb is detonated. It’s loud, bright orange and yellow, and narrowly misses her and her husband as they try to flee from the house. Gunfire erupts with bullets passing right by her. She is terrified. She sees no way of getting out alive. The loudness is overwhelming. Fire everywhere.

The Trapped Butterfly wakes up in a panic. She gasps for air and her body is tense. Her heart is pounding. She starts to look around the dark bedroom with the blue night light on. The white noise is comforting. Her husband is peacefully sleeping next to her. It’s after 3 AM.

She has always had weird dreams about people trying to hurt her but this was the most intense dream she has ever had. She is afraid to go back to sleep but she’s stuck in bed because she can’t just get up and go read or do something else. She finally meditates herself to sleep only to have more weird dreams.

The summer has been one of getting to do some things normally and safely. The staff at the eye clinic masked up and did their best to keep them away from people. However, she got to safely interact with some young children who were in the eye care center while they waited outside for the staff to get them right in a room. Their sweet, curious faces smiling at her and looking at her and her wheelchair with curiosity. It was wonderful and made her cry tears of joy when they got home.

The vet made it so she could come in with her husband and kitties for the first time since the pandemic started. Nobody was there and the tech put them right in a room. She and the doctor wore masks for her.

Her professor came over for a visit outside. She is going to be with them for The Trapped Butterfly’s birthday.

However, her world continues to blow up. Yes, she is very aware that actual bombs are still blowing up people in Ukraine and the Middle East. Gunfire is a common occurrence in her local area and in her country. However, she still has a right to her own pain.

Her new children’s book is done and was about ready to be published this week, but despite how hard she fought to pick up the pieces from her “chosen family” fucking around with getting it illustrated and then not finishing it because they were mad at her for stating facts and trying to enforce boundaries, the closer it got to actually publishing it, the more dread and panic filled her. This is not how one is supposed to feel about releasing a book.

She knows that she could do some controlled events with masks outside, but there are new variants of Covid going around and people are getting sick that are trying to still be careful. And she knows that seeing other local authors who are going to be doing their own events that she should be doing too.

Then there’s the media. Not that she expects to get famous, but the book was written many years before Covid. She never imagined that she wouldn’t be able to have a normal schedule of live events in her area. There are so many opportunities for book events in her area. How is she going to answer the questions that the media might ask.

Media: “Do you still love antiquing? How often do you go antiquing?”

The Trapped Butterfly: “I don’t get to go anymore because of Covid and our high risk of getting seriously ill.”

Media: “But other people with disabilities are out and about.”

The Trapped Butterfly: “Yeah and some are still dying from it.”

Media: Do you have any book events planned?”

The Trapped Butterfly: “Only private, controlled ones with people wearing masks.”

Cue up the laughter from the Covid deniers and the “how sad” but move right on with life from more sympathetic people. Yeah, no thanks.

She is dealing with an unbelievable ignorant, ableist world that has moved on from a virus that isn’t just a respiratory illness but a disease that attacks the body in ways we are just learning about. Yes, we are in a better place than we were last year with hospitalizations and deaths but we have not had a day where no deaths have happened in this country and other countries. Now hospitalizations are rising. There’s clear evidence from multiple research studies are showing that repeat infections of this virus is making people more likely to get seriously sick and die or get long term health problems. Covid is not the flu or a cold. It affects the nervous system, cardiovascular system, gastrointestinal system, and brain. Basically it attacks the whole body even with a mild case.

Then she’s having to deal with someone who is not Covid friendly which makes her sick. But she is making it work by being assertive. She should have done more research on the person. Yet, another mistake she made.

So another night she dreams about going back to school. They were in the wrong room and her professor came and found them. In her dream, The Trapped Butterfly was being pushed by someone else and they weren’t masked, thus, breathing on her. When her and her husband got into the correct classroom, they tried to sit where people wouldn’t sit right by them. Except they started crowding around her. She had a panic attack and started crying. Her husband got her out of there. She was sure that they would get Covid.

Dreams are weird. Some dreams she’s being normal with no worries about Covid. And others are just full of fear and panic.

After the going back to school dream, The Trapped Butterfly made the hard decision to delay releasing the book right now. She is terrified of getting this virus. She also doesn’t want to feel even more left out than she already does. So she is going to create a video and announce it to everyone. She feels selfish because she knows that the world needs another book like this. She knows that little children need a book to encourage them to keep fighting for their dreams and goals. But with the current uncertainty of the virus and even the uncertainty surrounding getting another shot soon is making her want to just cocoon herself again and do her best to enjoy the cosmic season of fall and early winter.

She is angry and sad. She still doesn’t understand why people are so ignorant and insensitive about the virus, thus, helping to make people who are trying to do everything right in order not to get sick, get sick. I wonder if some of these people would feel horrible if they found out that they put someone in the hospital by spreading it around instead of following proper precautions that are proven to prevent it. The media and government are not helping by downplaying it.

So here she is…Her birthday week…and her world continues to blow up all around her. Best to just cocoon and keep hoping that the day will eventually come when she is no longer trapped.

Down in a Hole

Alice In Chains blasted from the wireless speaker that her sister-in-law gave them years ago. The Trapped Butterfly was having a meltdown and her husband was helpless to help again after the meeting with the marketing agent working with her to get her children’s book published and out there!

The book is beautiful! The illustrator is excellent and got it all done in roughly 8 months. It’s now ready to be uploaded to Amazon. This will be happening this week. It’s still a few weeks away from being ready to be available to the public. She is grateful for that because, again, she feels like she doesn’t know if it’s the right time to publish the book.

Covid has gotten better the past few months but people are still dying from it when the flu is not around yet. There’s yet to be a week with no deaths in the country and world. Plus, long Covid is still an issue. People are accepting the unacceptable. Sure, 500 deaths per week is so much better than the thousands of deaths per week earlier in the pandemic. In March of this year, it was 1800 deaths per week. But people are still dying!

Her marketing agent is wonderful! However, in order to try to get people to come to events that will have to be outside, no “trigger words” can be used. She knows that the idiots get all mean and stupid when Covid and anything related to Covid is mentioned. Fewer people are masking regularly. She isn’t able to mask because of spasms and even if they are able to get it to stay on, it will further impede her ability to speak. She has wracked her brain to try to figure out how to do some events in person safely. Masking appropriately would make it safer for her and her husband to do so. Yet, it appears that that’s not possible from the marketing standpoint. So a bunch of people who may or may not be up to date with the vaccines will be interacting with them. Her husband will be taking credit cards and money from them. He is going to be helping her sign books. This puts him (and her since he is her 24 hour caregiver) at risk even though he will be masked as usual.

She watches other people live their lives in blissful chosen ignorance. She doesn’t know if she’s able to tolerate watching other authors doing the local events. She feels so robbed of something that is supposed to be joyful and fun!!

Thankfully, a little over a week ago she finally got some freedom safely. She sat in the cozy room that they were able to enter from the outside to avoid the rest of the tattoo shop. It was decorated with various weird things and artwork. The artist is so nice and willing to accommodate them! He finished the lizard leg that had been an open wound for 2 years. The needle stabbed her millions of times over the course of almost 3 hours. They could hear people talking in the main area of the shop. It felt wonderful!

Every time she looked at the progress of her leg, she was so happy and blown away. The artist wasn’t even fazed by her spasms. He created a beautiful piece out of a shitty outline. When it was finished, she was raw, but just stared at it especially when they had to go to the front desk to pay. Her husband remained masked and didn’t get close to anyone. While she waited for them to come back, she just kept staring at it and smiling.

Dark purple flower pedals. Green iguana with a grayish blue background. Bright peach desert flowers with green leaves and more grayish blue shading with the desert flower fauna. It could not have come out better—even if the original artist had finished it.

It’s still healing. Every time she sees it, she smiles at it instead of cursing it in her head or telling her late iguana that it will get done soon. She is so happy to have ink back in her life with an artist that is up to date with the Covid shots. He is also very like-minded about a number of other issues that are going on right now.

Why can’t there be more people like him? Also, she has been promoting the fact that July is Disability Pride Month. Until a couple years ago she didn’t even know about Disability Pride Month because the damn mainstream media ignores it. People with disabilities have been the most ignored minority with laws that used to not even allow them to be in public. Disability rights are constantly in jeopardy, especially now with the right wing cult trying to take away women’s rights and the LBGTQ+ community is also being attacked by the right wing cult. Taking away the rights of transgender individuals to get gender affirming care, not allowing transgender people to use the bathroom of the gender in which they identify, and not allowing them to change their gender on their driver’s licenses or ID cards. She is grateful to live in a state where these rights are protected.

She tries to calm her heart and anxiety. But as Alice In Chains sings, she is “down in a hole. Feeling so small. She wants to flllllyyyyy.”

Is Anything Good Enough? Is She Good Enough?

The Trapped Butterfly is feeling frustrated, depressed, overwhelmed and like nothing is good enough. No wonder since she has been told she isn’t good enough throughout her life by society and her family. Today’s Mother’s Day and it’s always been rough since her beloved mother-in-law left the Earth almost 8 years ago. She is always with them.

Over four years ago, The Trapped Butterfly found out that her mother was extremely narcissistic. The signs were always there but it took her mother rejecting a visit from them for The Trapped Butterfly to find out that her mother is very sick. It makes sense with all the horrible things that she has said to The Trapped Butterfly and the hidden criticism from her mother. After all, what kind of mother chooses a car over her child? What kind of mother would always keep things over her child’s head? And what kind of mother would tell her daughter that the corvette jacket that was her beloved grandpas’ would “look stupid on her” and refuse to let her have it? Not to mention the fact that she allowed The Trapped Butterfly and her siblings be abused by their father.

Yet, there are times when The Trapped Butterfly wants “her mom.”

On top of Mother’s Day, the children’s book that was so traumatic to get illustrated by supposed “friends” is finally almost finished. Yet, except for a few people, the lackluster response to the book is making her have loops of negative thinking which is something she constantly struggles with. Negative thoughts flying around her mind.

Is the book crap? Was it all for nothing? Was this another royal fuck up? What’s the point with Covid still being a threat to her husband and her which is infuriating!

She is grateful for meditation and to try to replace the thoughts with truth. But she is so fucking sensitive!! Even watching tv, she cries at literally everything that is sad or really happy. She has always been this way. Her husband always tells her that she can’t carry the whole world on her shoulders. Everything hurts her heart. She isn’t perfect and can definitely be a bitch, but she feels so deeply.

She knows that her book is awesome. The illustrator is a professional that is published as the illustrator of other books. So why wouldn’t anyone not love it except for the insane Christian right wing cult that hates anyone who is different from them?

She knows people are trying to help. She needs the help. But can’t it just be about getting endorsements and reviews? She isn’t ready for criticism about the damn book! She wrote the title of the book literally with her nose! Not an easy task to do!

It will all work out, she thinks to herself? Somehow the book will be published and it will be as successful as possible. What that looks like is a mystery.

She will always wonder if anything is good enough. She needs to keep learning the she is good enough no matter what society says.

And she won’t always be trapped.

Again…Really???

The Trapped Butterfly’s eyes and head hurt from just crying and sobbing! Her mind keeps spinning as she tries to process what her husband said after watching Downton Abbey. The character, Sybil, needlessly dies after having her baby due to the doctor and her father not wanting to listen to the other doctor who had known her her whole life and knew she was experiencing Preeclampsia. Had they gotten her to the hospital and delivered her baby via C-section, she and the baby girl would both have probably lived.

Of course, earlier today The Trapped Butterfly had a doctors appointment via telehealth where she asked about the treatment, Paxlovid, for Covid. Due to her severe cerebral palsy, she has trouble taking pills and is unable to take any that are not small. Even those can be a nightmare to swallow. So if The Trapped Butterfly gets Covid, her doctor said that she would put her on the Z-Pack (liquid) to prevent any nasty bacteria and steroids. Basically the treatment that was given at the start of the pandemic. Isn’t that nice?? Just symptom treatment and not something that is proven to keep most people at risk of severe illness from Covid out of the hospital or dying.

She was encouraged that the doctor said she was seeing milder cases recently.

But the fact that The Trapped Butterfly has to solely rely on the shots that she has gotten to fight it off made her cry a little right after the appointment. Then watching this heartbreaking episode of Downton Abbey made her husband finally breakdown and tell her that he was terrified of the tattoo appointment on Monday. The artist isn’t vaccinated against Covid and when The Trapped Butterfly checked in with her, she claimed she couldn’t find a N95 mask and to please bring one with a laugh. Her husband isn’t comfortable with her at all.

The Trapped Butterfly knows he is right and feels stupid for making the appointment in desperation to get this damn lizard leg done. But now she has to cancel again. She worries about how it will be received and if it will ruin other chances of getting ink. She is terrified of not finding someone to do it and do a cover up for her. She is terrified of her life being stolen even more. Why’d Roo and Yellow Man have to turn out to be fucked up assholes?

Sadness, anger, despair, exhaustion, fear and panic keep running rampant through her. Thankfully her meditation practice along with pot and a few shots of tequila with a beer are helping her to feel it without running away. It’s hurting so much. She talks to herself like a mother would….

It’s ok, Little One.” “It’s ok to cry and be sad and angry.” “I know you’re having so many scary thoughts.” “You got this.”

She was looking forward to seeing what the artist would do with the tattoo. She was looking forward to a break from her life and the fact that she was choosing the pain of the tattoo. And finally having her leg look different…but again…It’s being ripped away from her because fucking Covid could still really hurt her and she doesn’t want her husband to watch her die an awful death. And despite it getting better, she doesn’t want to see her husband die from it either.

She hopes that the anniversary celebration will happen. Is anything safe? Why can’t they get a vaccine that will prevent it? Why????

For now she will use the following memory to try to get her through.

She’s lying on the soft orange carpet in front of her grandparents’ fireplace with a round coffee table in the middle of the room. She is lying on a soft pillow and is covered with a blanket. Grandpa is lying right next to her watching tv. She must have been sleepy because she has her head turned towards her grandpa and is looking at the shirt he is wearing. He is warm and she feels very safe with him. The shirt has the city of Chicago on it which is where she had just taken a school field trip.

She will fall asleep and will be carried to their bed without waking up. She is safe with her grandpa….

Who she truly is

The Trapped Butterfly is feeling at a complete loss again. In April, she and her husband are going to be celebrating their 20th wedding anniversary! 20 years of marriage and love have made it through so much shit. From her abusive dad’s disowning to his sudden death almost four months after they got married. The marriage has survived her mental health issues and his issues from being on antidepressants. It’s survived losses that have made them sob. And it has survived the realization that her mother is a narcissist. Being physically disabled as well as all the dysfunction of her family has made their relationship harder than most. Not to mention their age difference has made people feel weird. Their problem!!

Now it’s surviving the ongoing pandemic that everyone is trying desperately to ignore even more, therefore, making life miserable and dangerous for everyone who is high risk and immunocompromised.

The Trapped Butterfly is incredibly proud of her marriage. She never thought she would ever find a man who would love her the way he does. She means wiping someone’s ass several times a day isn’t exactly romantic, but it’s a way that he loves her through doing all the care she requires 24/7. He has said many times that “he gets to care for her.” It’s his choice to do this.

So naturally she wants to do something special for their wedding anniversary. But Covid doesn’t make it a easy. They used to be able to plan stuff and go to concerts and stuff, but not anymore. Without Covid, they would probably find a fun event/concert to go to or take a day trip to explore a city or town. Yeah, they still had to think about how her needs would fit in with the plans and just plan it out, but they were able to go have fun with just the “normal” complications of having a severe disability.

Now they can’t do anything without a major plan to stay safe from Covid. She can’t bear not to be “normal” and celebrate her anniversary. She came up with a vow renewal and a small simple celebration. But trying to find a venue that would be totally private and safe from Covid isn’t easy. Her former professor, now friend, is trying to find a place. They still need a photographer that will wear a mask correctly.

Why can’t this be easy??

Yesterday she was feeling really overwhelmed and was listening to music when the song, “I Don’t Know You Anymore” by Savage Garden came on. That song is about ex lovers, but for her it reminds her of her family and friends that have hurt her to the point of not being able to have them in their life anymore. She misses them so much, which is confusing. Why does she even still love them so much?

The lyrics below are words she wishes some of her family and friends would say to her since she has always been willing to apologize and accept the part she played in the hurt.

"I know I let you down
Again and again
I know I never really treated you right
I've paid the price
I'm still paying for it every day."

But it’s highly doubtful that that will ever happen because it would have already if they were healthy emotionally.

But it hit her in the moment that she absolutely craves healthy, peaceful relationships with people. Her parents didn’t teach her how to handle her emotions. She is a hot head and lashes out. However, this has improved since she started meditating with the Calm app. She is human. She doesn’t have it all figured out yet, and living in ongoing quarantine to avoid getting Covid that’s killing people even if the death isn’t right away has made her struggle with her anger, anxiety, and depression like she never has before.

She now realizes that she has craved peace since she was a child. Yes, she had time when they were enjoying stuff. She loved, for the most part, being at her grandparents’ house when they took care of her in the summer. She loved being with friends and going out. All the normal kid stuff.

Still, at any given moment, her dad could get angry and the yelling would start. If it were one of the kids, sometimes the hitting soon followed. If it was with her mother, the yelling would get louder and louder and sometimes things got thrown. She remembers this from her toddler years. She would cry and scream because she just wanted it to stop. She also was left in her room to cry so she has trouble with self-regulation.

She can feel herself now when she’s upset saying something that she doesn’t really want to say but she can’t always control it. She beats herself up for not being able to stop it. But she’s truly a peaceful person. Not a submissive person. Fuck that! She will always stand up for herself and fight for causes. But she desires peace.

She often wonders who she would be now that it’s been almost four years since she wrote that heartbreaking letter to her narcissistic mother to get her to get help for a year and went no contact. Sadly, her mother proved she was, indeed, narcissistic and did a bunch of horrible shit until they finally blocked her on the phone. Who would she be if Covid never happened and she was able to really work with her therapist to cope with life without her mother and family? She knows that she would always have her anxiety, depression, PTSD, and CPTSD, but would she be happier? Would she be more able to cope with it?

It’s sad that she will never know the answers to these questions. All she can do is try to keep hoping that a true breakthrough for Covid will come in the next few years to let them live their lives again before age catches up with them even more. May she remember that she desires peace. And may they be able to safely celebrate their 20th anniversary in April with a few friends. They definitely deserve it!!!

Dreams about them

The past two nights The Trapped Butterfly has been dreaming about her once chosen family. Check out Fuck you, Roo!! for a little context into something that was seemingly so beautiful and cosmic into something so dark, hateful, and ruthless. Obviously, The Trapped Butterfly is still struggling with the whole thing because she still loves them. She wishes she could fix it and get it back for her and her husband.

She wishes she didn’t still miss them as well as her narcissistic mother and her whole biological family because they have all hurt her so deeply that she should have nothing but hate for them. Believe her, she has had plenty of times when she has hated them as the hurt, anger, and rage shake throughout her body making her want to lash out. But she knows better and that isn’t who she is.

The Trapped Butterfly has been having a lot of thoughts since the fall and can’t believe how isolated they are. Yes, they still have a lot of friends and professors who care about them and have helped them. But they have lost their main support system due to Covid, selfishness, and finally, crushing malicious narcissism. Yes, in some relationships she has had a part in this, but it was not always her fault despite what they said. Yet, she is so used to being blamed for everything that she has blamed herself at times. Yet, she apologized to those who she had offended but they didn’t accept her apology.

So both of her dreams the past two nights have been about working it out with Roo and Mr. Yellow. It was a long dream but they were at their house. Other people were around. Roo even talked about where to put something her mother gave her.

Finally, The Trapped Butterfly was able to get one on one with Roo. She tearfully explained to Roo how sorry she was for hurting them. She honestly never ever meant to. Eventually Roo softened her stance and forgave her. They were able to come to terms with everything.

Mr. Yellow was very reluctant to speak to The Trapped Butterfly. She would look at him and he would turn away from her. After several pleas to talk to Mr. Yellow, Roo got him to come talk to her.

Again, The Trapped Butterfly tearfully explains that she never meant to hurt him and she was so sorry. Mr. Yellow got teary eyed and hugged her. She ended up getting them back and they all just moved on.

She hated it when she woke up in the morning. It was one of those dreams that continued despite her brief awakenings throughout the night. It made her feel sad and depressed.

The very next night she had another long dream about them. This time they were taking care of her while her husband had to go do something. With her severe cerebral palsy, she truly can’t be left alone at all and sometimes this crosses over into her dreams.

In this dream, Mr. Yellow was carrying her around the house and Roo did some dressing and she sat with her on the couch so that The Trapped Butterfly wouldn’t fall over. It was normal except for some weird people popping in and out. But they were high and goofing around like they used to do.

When her husband arrived back at their house, The Trapped Butterfly told him how great they were with her and how much fun they had. Her husband was so relieved.

Waking up from this dream after the one the night before had her very sad and wanting so badly to be able to get back what they’ve lost. But Roo is mentally ill and narcissistic like The Trapped Butterfly’s mother and other family members. It hurts so much. Her husband came clean about seeing a little more of how Roo was throwing a certain project that they were doing in her face later in the day.

The Trapped Butterfly can only hope that the future will hold friends that are healthy. She can only hope that the lizard leg will be finished soon enough since they had to cancel the appointment due to the fall they took the 2.5 weeks ago.

She will not let any more narcissists take advantage of her again if she can help it.

She will continue to grieve for her old life. And tomorrow is 16 years since her first kitty crossed the rainbow bridge. She will always remember people but she will never let them hurt her and her husband again.

The Gate

The Trapped Butterfly is still in pain after the horrific fall that her husband and her took a week and a half ago. Not fun when you have no choice but to sit in a wheelchair for hours in order to live. She is finally getting better as is her husband. But she is still struggling with the anxiety of falling again despite her ability to count the number of times that they have fallen in the past 24 years together on one hand. The story of the fall is for another time when she feels ready to write it. Not tonight.

Tonight she finds herself feeling depressed, sad, angry, exhausted. She is an open book anyway which often gets criticized because others are much more private than she is. Don’t tell her not to post something that is directly related to her. She feels so triggered because before she had to cut ties with her narcissistic mother and other family, her mother would be controlling and criticizing of some of her social media posts. Bull shit! She has a right to post whatever she wants as long as it doesn’t violate someone’s outright privacy. They do what they want.

However, The Trapped Butterfly is currently seeing why it may not always be worth giving details of her life online. Yet, she wants to be supported and encouraged especially when she is going on three fucking years of not being able to just be around people. God damn Covid. God damn the people that won’t do everything to help keep it as low as possible!

People who mean well were giving her ideas from getting an aide to getting a lift to help her husband with her care. She knows that they want to help them, but only one person recognizes that she and her husband have been talking about it and trying to get help but they don’t qualify for the type of help they require. They’ve tried many times. The second she got married almost 20 years ago she lost all her disability benefits. The fucking USA expects the disabled population to live way below the poverty line in order to get the help they need with extremely expensive adaptive equipment and services that will allow them to live independently and comfortably.

And now Covid has made it pretty much impossible for them to even try again because they are so high risk. She had a very telling dream the other night that they were going to a made up mall. When they got into the parking lot, there was a huge cement gate with the name of the university that she had went to and it was closed. The Trapped Butterfly looked at her husband like, “what the fuck?” The door of the gate was metal and dark while the rest of the gate was cement and brick.

Somehow her husband was able to find a way around the wall but when they started walking around the mall, every store was being packed up. She doesn’t remember but she doesn’t think anyone would interact with them.

It was such a weird, short dream but her husband said that it is obvious that she felt trapped and rejected. Basically, unseen.

Bingo! As people have brought up things that have been hard for her her whole life…Getting someone who is willing to do everything for her (feed, lift, take her to the bathroom, physically help with her schoolwork) wasn’t easy even when the damn school district was hiring and paying for them while she was in school. Thankfully, her parents found her a perfect babysitter until the babysitter moved after she finished her first year of high school. Then there were a couple other people that cared for her after school and on days off.

She found one aide after a first try when she graduated high school and the state was paying for them. That aide was with her for a few years before she had to quit. They had to get an agency that could provide aides quickly. The main aide was great. But a sub didn’t understand that she was talking when she talked. The Trapped Butterfly had to get a teacher to explain to the aide that every time she spoke, she wasn’t just “making noises.”

When the state decided that they couldn’t use the agency anymore and had to hire someone independently, they, again, looked through lists of people who wanted to work with in home care for people with disabilities and put an ad in the paper. But The Trapped Butterfly was in community college and her mother had to keep working, so her wonderful husband, then boyfriend/fiancé eventually quit his job and became her aide.

They were lucky that the university helped with aides for certain things that her husband didn’t want to do. Besides, she wanted to prove herself with other people helping her out. Her husband was still her primary caregiver and aide at the university.

After she graduated from the university, they went through the degrading process of trying to get the state to pay for someone to just sit with her for a few hours a couple days a week so her husband could ride his motorcycle but they didn’t qualify so they had to pay for the person who wasn’t always reliable. Thankfully, The Trapped Butterfly’s friend offered to have her over for free just to hang out.

Now the ongoing pandemic has limited her ability to do anything. There’s a fucking closed gate in front of her that unlike her dream, there’s NO WAY TO GET AROUND SAFELY!! Trapped AGAIN…

The Dark RAGE

Reader discretion is strongly advised. This is totally fiction!

The needle goes deep into the muscle! “Shut the fuck up,” she screams. He looks up at her with fear and shock. He is an anti-vax person who thinks vaccines are going to kill people.

She roughly pushes the liquid into his arm. She has him tied to his chair. His feet are tied to the leg of the chair. She wraps him up with straps that are so tight that he can’t fucking move! All he does now is plead with her and lie to try to get free. He doesn’t want the shot but she is giving it to him.

He screams in horror when she pushes the rest of the liquid into his arm. She yanks the needle out. “What’s the matter? You got a little shot? Awwww, poor baby.” she says tauntingly. “Why’d you do that to me?” he pathetically asks.

She gets a half smile and half rage look on her face and says to him, “Because it’s good for you and because I’m fucking sick of people like you making us suffer so you can be free!” “Do you know how fucking tired of it I am? It’s making me crazy! Now I’m even more unseen and alone!” She gets right in his masked face that she tied around his head. She makes him peer into her angry eyes.

“How ya feeling?” she asks in a angry and sarcastic tone. “Are you dying yet?” “You know how these are supposed to kill people?” Her rage and anger are undeniable. She has been trying so hard to be respectful of others, but yet, keep advocating for truth and science regardless. Covid is deadly but people are just moving on like it’s not even serious anymore and ignoring people who are high risk and not as visible to the public as the majority.

So she stole the vaccine from the hospital and then she went to the place where he worked. She was able to subdue him and plunge the damn shot in his arm. She leaves him there for his wife to find him. Soon it will be the wife’s turn to get her shot!